OXFORD—
A local couple gained unanimous support last night from the Board of
Selectmen for a fundraiser that the mother and father hope could pay
for research that might save their daughter and thousands of other
babies and children born with life-threatening heart defects.
Jennifer C. Garvey and Kevin D. Garvey of Whiting Road, with
help from daughters Kelsey C. Garvey, 8, and Mikayla M. Garvey, 2, are
holding a “Change for the Heart” coin collection at the Alfred M.
Chaffee School.
With permission gained from selectmen yesterday, collection
cans will also be placed at area businesses. All proceeds will go
directly to the cardiovascular program at Children’s Hospital in
Boston, Mrs. Garvey said.
“My hope is to raise a lot of funds. Research is needed. Right
now, the life expectancy of someone with Mikayla’s defect is 22 years.
I want more for her,” Mrs. Garvey said.
In hopes of gaining support for their cause, the Garveys are
sharing Mikayla’s story. “If you put yourself behind a closed door, you
can’t help others,” Mrs. Garvey said.
Last night, she introduced Mikayla to selectmen, asking that
the board recognize this week, Feb. 7-14, as National Congenital Heart
Defect Awareness Week. The board voted unanimously to do so.
Selectman Susan M. Gallant said, “My nephew, Manny, has the same disorder as Mikayla. Thank you very much. This is important.”
Jennie L. Caissie, chairman of the board, said, “This provides an opportunity to raise public awareness.”
Mikayla, a tiny girl with huge blue eyes and long, curly blond
hair, was born on Sept. 4, 2003, with a rare heart defect, hypoplastic
left heart syndrome. This means that the entire left side her heart is
basically missing. Without treatment, this defect is usually fatal
within the first few days or months of the baby’s life, according to
the American Heart Association’s Web site at
www.americanheart.org.
Mikayla’s pediatrician, Dr. Nancy W. DeTora, said it is vital to catch
defects such as Mikayla’s early, through ultrasound testing.
Mikayla’s underdeveloped heart first stopped beating when she
was 4 days old. She was put on a ventilator and had her first heart
surgery the following day. Her second surgery was done when she was 4
months old.
“She just really noticed the scar on her chest yesterday, in
the bathtub. She calls it her ‘car,’ since she has trouble pronouncing
her S’s,” Mrs. Garvey said.
That scar will have to be opened for a third open heart surgery on March 8.
Mikayla is bright and active, but there are signs that there is
a problem. At 29 months of age, she weighs only 20 pounds and wears
clothes designed for a child 12 to 18 months old.
“She’s been the same weight for 18 months. She should weigh closer to 30 pounds,” Mrs. Garvey said.
When Mikayla runs for more than a few minutes, she becomes
short of breath, and her tiny fingers, toes and lips take on a blue
tinge from lack of oxygen.
A cold she caught last week sent her to the emergency room. An
oxygen tank still stands ready to supplement her intake when needed.